Or. Admin. R. 333-010-0050 - Confidentiality and Access to Data

All identifying information regarding individual patients, cancer reporting facilities, and practitioners required to be reported to the central cancer registry is confidential and privileged.  The information collected and maintained by the registry must be stored in secure locations.  The information may be disclosed for purposes directly related to the registry, and in the following circumstances:

• When the Oregon Health Authority’s Public Health Division has entered into a reciprocal cooperative agreement with other states that have comparable confidentiality protections to exchange information on resident cases;
• When disclosure to officers or employees of government public health agencies is necessary to investigate or avoid a clear and immediate danger to other individuals or to the public generally;
• When the division contracts with another agency with comparable confidentiality protections for performance of a registry function, if the contractor has agreed to use the information only for the purposes of a central cancer registry, to maintain the information securely, and to protect the information from unauthorized disclosure;
• When the division deems disclosure necessary for others to conduct research.

Reporting facilities and practitioners will have access to confidential and privileged data on any case submitted by that facility or practitioner.  When a patient has been seen for care of a case of cancer by multiple cancer reporting facilities or practitioners, the Division may share information on treatment and follow-up among those involved with the patient’s care, provided that all participating facilities and providers have signed agreements with the Division to do so.